I have a free night at home tonight and since Caitlyn showed some improvement today due to recent events I decided to give a quick update.

What a road we have traveled in nearly the past month and a half. March 13th we left for Caitlyn’sMake a Wish trip and with the exception of one night, March 24th, we haven’t been home as a family since. While the trip was unbelievable, it did end on a sour note with a trip to the ER in the Bahamas > to the airport > flight home > to the hospital here MFCH. On March 18th Caitlyn started her first round of chemo which went fine but after one night at home her ammonia level rose and was admitted to the PICU for 5 days to bring that level down. After those 5 days she was moved back upstairs at MFCH to the Arts unit to await her next round of Chemo.

Round 2 began late on April 8thwitha bit of a difference from the first round in the way she reacted. With round 1 Caitlyns ammonia level didn’t max out so to speak until a week later and went no higher than 202. During this round it seemed to climb from the start and didn’t stop until she slipped into a coma at 12:22 AM on Saturday April 11th (Georgine’s birthday). I started to notice Caitlynbeing a little confused Thursday night and by Friday morning she was full blown confused and continued getting worse as the day went on. 344 was the highest recorded ammonia level late on Friday night with subsequent levels over 300 on the next 2 or 3 blood draws. Needless to say Caitlyn was in a coma state more or less from Saturday through Monday, the following days have shown improvement each day including today which was close to the Caitlyn we know but still far off as well.

At this point Caitlyn is suffering from the effects of Hepatic encephalopathy, which she will return to normal over time. The road ahead is uncertain in terms of treatment as we await testing to see if we will continue chemo or return to using sorafenib.

I want to say Thank You to all who have offered support to our family be it through fund raising or keeping Caitlyn in your prayers of which Caitlyn is prayed for litteraly around the world. All of you are the inspiration in “FIGHT”. I can tell you this, Caitlyn is fighting with super human strength and has been all along. It is hard to put this into words other than to say Caitlyn has already won her fight either way.

Now I know I jumped like 3 months plus in the blog and when Caitlyn comes home I will fill in the blanks. Just wanted to say hello and Thank You!!!!

Joe

Keep The “FIGHT” Strong!